Toolkit

To manage and recover from ME/CFS (chronic fatigue syndrome), we all need a range of strategies.  It is often the small details that added up over time can make a big difference to how your ME/CFS (chronic fatigue syndrome) feels.  Now, I’m much more of a big picture kind of person and only seem to do detail when it’s essential so you can be assured if I’m talking about a particular technique, it is one that will help.  I am just starting to write about the different strategies that I think are of use so it will be a bit before the toolkit has many tools in it. See below about my Pinterest board if you want details NOW. (This was me during my relapse.) Don’t forget to subscribe here or follow me on Facebook  or if you want to hear when I’ve written something new. I’m also just starting to use Facebook more as I find it a lot, lot easier to write a short Facebook post rather than a blog!

Often, those strategies are pretty tough to do regularly and consistently, and I talk about the ‘Hidden side’ in many posts. Click on that tab if you want to see what I’ve written so far.

When my ME/CFS was at its worst was when I used the most strategies – over 25.  I’ve creating a Pinterest board to show them all. Pinterest board: Toolkit of techniques to manage CFS

Here’s what I’ve written so far:

33 Ways to Rest Well with ME/CFS

Two do’s and two don’ts to guide you through the complexity of ME/CFS

How a simple plan was a game changer for my ME/CFS, and how to create your own.

Four favourite ways to manage stress with Eden Energy Medicine.

Another spoon? YES, please. Ways to think about your energy that may help you have just a little bit more.

Doing something out of the ordinary? 10 questions to ask yourself.

Get Well Soon book review: informative and encouraging story of a music journalist’s experience of ME/CFS  (Nick’s book actually fits in Hidden side too as he talks about how it is to have chronic fatigue syndrome.)

Chi Gong – gentle movements to help you relax.

Now THAT’S what I call a holiday. Fifteen suggestions for a deeply relaxing and restorative ME/CFS break.

Where can I look for support? Three groups to help you on your ME/CFS journey.

You may want to check my Home page as I don’t always get round to updating this one! There’s three posts linked to the top and then it shows the most recent posts.

My blog is a work in progress and there are many areas I’ve not yet written about.  If you need an overview of ME/CFS, have a look at this Healthrising article:

Tips for Newbies with Fibromyalgia and/or Chronic Fatigue Syndrome

It’s not just for ‘newbies’!

Warm wishes

Ali

2 Replies to “Toolkit”

  1. Thanks for all the usefull tips Ali, after 25 years of moderate M.E I’m finally addressing activities/rest rather than the constant push / crash cycle I’ve been in! Addressing trauma via EFT is a very important component as anxiety prevents me resting. Constantly in flight/ fight.

    Liked by 1 person

    1. So glad you’re now starting to shift out of the push/ crash cycle and looking for ways to help yourself! Hoping to write an article called ‘What’s trauma got to do with ME’ at some point as it’s such an important topic so keep an eye out for it. Did you spot my post about Tapping resources? Here’s the link in case you didn’t. https://everydaykindoflife.wordpress.com/2020/08/07/tapping-resources-for-a-chronic-illness-life/
      Warm wishes to you on your ME/CFS journey. ❤️

      Like

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