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Welcome to my blog!
For thirteen years or so, I had mild chronic fatigue syndrome, ME/CFS. Then, in October 2016, overnight, I dropped from a 70% kind of life to a 20% one. Six months later – much to my surprise – I recovered.  I started my blog so that more people would hear about Eden Energy Medicine, the alternative therapy that has made such a difference to me and to others with ME/CFS.  Since then the blog has expanded as I keep thinking of topics that somebody with ME/CFS might benefit from.  I write from the perspective of somebody who, now my brain fog has lifted, is starting to see clarity about what helped me – and what didn’t.  Enjoy!  Read below to see what I have written about so far and what I intend to write about.

My story of recovery is the centrepiece of the blog and a good place to start:

I would have paid ten thousand pounds.   You can read this wherever you are in the blog by choosing the ‘My story’ tab.  You may also like The problem with my recovery story.  I also have a shorter version of my story, written nearly two years after I recovered. That’s here: Six months on from a major ME/CFS relapse I recovered. Here’s how.

Other popular posts are:

33 Ways to Rest Well with ME/CFS.  If you are just starting to look at how you can help yourself, rest is where you want to start; if you’ve just had a crash or relapse, rest is where you want to start; if you’re looking to move towards better ME/CFS health, rest is your starting point. I don’t think I can emphasise enough how important rest is.

Two do’s and two don’ts to guide you through the complexity of ME/CFS. A post that’s designed to help you simplify how you think about ME/CFS whether you are just starting out on your journey or have had ME/CFS for a number of years.

A Messed up Fight or Flight Response?  This post talks about whether my experience of ME/CFS fits with the hypothesis that ME/CFS is affected by an overactive/ underactive fight or flight response.

It wasn’t hope that got me better speaks about how difficult I found hope during my relapse.

Now THAT’S what I call a holiday. Fifteen suggestions for a deeply relaxing and restorative ME/CFS break.

How a simple plan was a game changer for my ME/CFS, and how to create your own.

Doing something out of the ordinary? 10 questions to ask yourself.

Where can I look for support? Facebook groups and pages to help you on your ME/CFS journey.

From there you may want to explore a number of posts talking about Eden Energy Medicine, the alternative therapy I used to help me get better:

11 ways Eden Energy Medicine is such a good treatment for ME/CFS.

What is Eden Energy Medicine?.  A couple of paragraphs explaining what Eden Energy Medicine is then ten or so questions answered.  The best post to start with to find out more about Eden Energy Medicine.

Finding out more about Eden energy medicine. A post full of links to help you find out ‘What exactly is energy medicine’

How to try Eden Energy Medicine for free.

Will Energy Medicine help me?.  If you don’t have chronic fatigue but are interested in whether energy medicine could help you or someone you know, this post has some suggestions.

Why did I never think of that? and Tips on how to find a reputable practitioner both talk about steps to take to make sure you choose a practitioner that can help you.

Eden Energy Medicine Sessions and Eden Energy Medicine Sessions Part 2 talk about what an Eden Energy Medicine session is like using the vehicle of some sessions I am having at the moment.

Four favourite ways to manage stress with Eden Energy Medicine.

Energy medicine exercises for after recovery Gives you an idea of the type of exercises I am continuing to do.

I’m just starting to write or have ideas for posts in a couple of other ares. One is what I think of as the Toolkit – practical ideas to help manage ME/CFS.

Here’s what I’ve written so far:

How a simple plan was a game changer for my ME/CFS, and how to create your own.

Another spoon? YES, please. Ways to think about your energy that may help you have just a little bit more.

Get Well Soon book review: informative and encouraging story of a music journalist’s experience of ME/CFS

Doing something out of the ordinary? 10 questions to ask yourself.

Chi Gong – gentle movements to help you relax.

Now THAT’S what I call a holiday. Fifteen suggestions for a deeply relaxing and restorative ME/CFS break.

Where can I look for support? Facebook groups and pages to help you on your ME/CFS journey.

I call another area the Hidden side and this is all about the invisible aspects of ME/CFS – the emotions we go through, the characteristics that may hinder or help.  It wasn’t hope that got me better. fits in this category as does Research Articles: Help or Hindrance?   Other ones I’m thinking of writing include:

What stopped me? Or why didn’t  I try that before?

I CANNOT BELIEVE it: how my relapse turned out to a blessing in (very heavy) disguise.

Grieving your old life.

Why a little bit of self-awareness can make a BIG difference.

It definitely helped me when I gained Insights into ME/CFS itself so this is a third category.  A Messed up Fight or Flight Response? and Background reading to ‘A Messed up Fight or Flight Response?’  fit into here and Research Articles: Help or Hindrance?    kind of does (but also fits under ‘Hidden Stuff’).

I have also collated (some of!) my Facebook posts. Have a look at Monthly Musings to see what I’ve covered.

Behind all of these, I am in some way trying to answer the question ‘Why did I recover?’ and when I thought about the structure of my blog, this seemed to need a place. I think it fits above all the sections I’ve mentioned above though it is waiting for me to be ready to pull all my ideas together. I am starting to get clarity and insights as I write more and more posts so watch this space!

And for completeness:

It’s been SO SO long.   My very first blog where I am just giddy with happiness that I’ve recovered.

Why not?.  Here I talk about why I started this blog.

Explore my blog, find insights and support. Contact me if you have questions. Tell me what posts I’ve mentioned you’re really keen on reading in the comments box below and, if you want to know when I post something new there’s three ways of doing it:

By following or liking me on my Facebook page.  If you’d like to know what I write about on my Facebook page, have a look at one of my Monthly Musings such as this one Monthly Musings: February ’19 Facebook posts.

By subscribing  . You’ll get one or two emails a month whenever I write a new post, and you’ll be able to unsubscribe whenever you want.

And if you have a WordPress account, by liking this blog.

Thank you!

Ali

 

 

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A blog offering practical and emotional support for those with ME/CFS