33 Ways to Rest Well with ME/CFS

One of the cornerstones of living well with ME/CFS is getting your rests right - certainly, that’s what was true for me. When I did get my rests right, I had moments when I felt ‘okay’, when my brain fog was less and when I felt even normal. Those moments may well have been brief …

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A Messed up Fight or Flight Response?

When I first read about the idea that Chronic Fatigue Syndrome (CFS) was caused by the fight or flight response being on all the time, my reaction was doubt. There are many, many theories about what causes chronic fatigue, was this just another one? Then as I learnt more about the fight or flight response, I found …

I would have paid ten thousand pounds.

I would have paid ten thousand pounds to be better. Chronic fatigue syndrome (CFS) is an illness that, perhaps, to some people doesn’t seem much: ‘Everybody gets tired’. This is an illness that you have to live with before you feel the far-reaching implications of never having much energy. An illness that is more destructive …

Four favourite ways to manage stress with Eden Energy Medicine.

  Managing stress is so, so important whatever your health is like but especially if you have a chronic illness that worsens with stress, such as ME/CFS. I’ve gathered a few different ways over the years to control my stress levels but the combination of touch and movement that is Eden Energy Medicine (the alternative …

Now THAT’S what I call a holiday. Fifteen suggestions for a deeply relaxing and restorative ME/CFS break.

I could never quite understand how by the end of my two and a half week summer holiday I could have so much energy, how I could walk so far. So much energy it was embarrassing: ‘I've got ME/CFS, I'm not meant to have this level of energy.' It was such a big change from …

The problem with my recovery story.

It seems too quick, doesn’t it? Two weeks before I recovered from chronic fatigue syndrome (CFS), I felt I’d reached a standstill. All of my efforts to improve after a major relapse seemed to have led to nothing and I felt I needed to accept the restricted life I was now leading - even cut …

Where can I look for support? Facebook groups and pages to help you on your ME/CFS journey.

When my life got turned upside down by a major chronic fatigue syndrome relapse, one of the most difficult aspects was the feeling of isolation. From being able to go out and socialise (admittedly in a controlled way) to only being able to manage email or texts, my social contact shrank overnight. I knew very …

Another spoon? YES, please. Ways to think about your energy that may help you have just a little bit more.

I didn’t know about  the spoon theory until the last few months of my chronic fatigue syndrome. I’m not quite sure how I missed it. It makes so much sense, doesn’t it? We each have so many spoons a day - a lot less if you have a chronic illness - and we have to share …

Get Well Soon book review: informative and encouraging story of a music journalist’s experience of ME/CFS

I first heard of Nick Duerden through an article he wrote in the Guardian about  health memoirs.  A few weeks later, I spotted his book, Get Well Soon, in a very small bookshop that I go into once every few years. The coincidence seemed too big: I decided I really needed to get this book. …

Doing something out of the ordinary? 10 questions to ask yourself.

I don't know about you and your chronic fatigue syndrome (CFS) but whenever I did something a little bit out of the ordinary - something in addition to my normal routine - I often ended up falling over. Whatever I thought I could do, whatever my great ideas were, they just didn't happen that way and what I'd hoped would be a pleasant break wasn't.

Chi Gong – gentle movements to help you relax.

I’ve got a blogpost in the pipeline where I talk about the twenty five and more different things that helped to propel me from a major relapse to recovery......  But as it is a very long pipeline I was delighted when I came across a blog about Chi Gong and chronic fatigue syndrome as the meditative …