33 Ways to Rest Well with ME/CFS

One of the cornerstones of living well with ME/CFS is getting your rests right - certainly, that’s what was true for me. When I did get my rests right, I had moments when I felt ‘okay’, when my brain fog was less and when I felt even normal. Those moments may well have been brief …

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A Messed up Fight or Flight Response?

When I first read about the idea that Chronic Fatigue Syndrome (CFS) was caused by the fight or flight response being on all the time, my reaction was doubt. There are many, many theories about what causes chronic fatigue, was this just another one? Then as I learnt more about the fight or flight response, I found …

I would have paid ten thousand pounds.

I would have paid ten thousand pounds to be better. Chronic fatigue syndrome (CFS) is an illness that, perhaps, to some people doesn’t seem much: ‘Everybody gets tired’. This is an illness that you have to live with before you feel the far-reaching implications of never having much energy. An illness that is more destructive …

Monthly Musings: February ’19 Facebook posts.

Once or twice a week, I write a short post on my Facebook page. Those posts are often on topics I haven’t written a blog post about yet and I hope contain lots of useful ideas.  The problem being they quickly get lost on Facebook - and can be hard to search for. So, at the …

Four ways Eden Energy Medicine helped me to understand my ME/CFS more.

In the years before a major ME/CFS relapse, I tried various complementary therapies to no avail. The only practitioner that seemed to have any understanding of how ME/CFS was affecting my body was my Chinese massage practitioner when he described my body as being ‘on vigilant’ all the time but he could give no more …

Monthly musings: January ‘19 Facebook posts.

Once or twice a week, I write a short post on my Facebook page. Those posts are often on topics I haven’t written a blog post about yet and I hope contain lots of useful ideas.  The problem being they quickly get lost on Facebook - and can be hard to search for. So, at the …

Four favourite ways to manage stress with Eden Energy Medicine.

  Managing stress is so, so important whatever your health is like but especially if you have a chronic illness that worsens with stress, such as ME/CFS. I’ve gathered a few different ways over the years to control my stress levels but the combination of touch and movement that is Eden Energy Medicine (the alternative …

Now THAT’S what I call a holiday. Fifteen suggestions for a deeply relaxing and restorative ME/CFS break.

I could never quite understand how by the end of my two and a half week summer holiday I could have so much energy, how I could walk so far. So much energy it was embarrassing: ‘I've got ME/CFS, I'm not meant to have this level of energy.' It was such a big change from …

The problem with my recovery story.

It seems too quick, doesn’t it? Two weeks before I recovered from chronic fatigue syndrome (CFS), I felt I’d reached a standstill. All of my efforts to improve after a major relapse seemed to have led to nothing and I felt I needed to accept the restricted life I was now leading - even cut …

Where can I look for support? Facebook groups and pages to help you on your ME/CFS journey.

When my life got turned upside down by a major chronic fatigue syndrome relapse, one of the most difficult aspects was the feeling of isolation. From being able to go out and socialise (admittedly in a controlled way) to only being able to manage email or texts, my social contact shrank overnight. I knew very …