It wasn’t hope that got me better.

I've been having a look at a few Chronic Fatigue Syndrome (CFS) websites recently, looking for sites that might be happy to mention this blog.  Along the way, I came across CFS Unravelled, where Dan Neuffer who runs the site, has some good blogs: blogs that when you read them, you think 'yes, that fits'. …

Advertisements

A Messed up Fight or Flight Response?

When I first read about the idea that Chronic Fatigue Syndrome (CFS) was caused by the fight or flight response being on all the time, my reaction was doubt. There are many, many theories about what causes chronic fatigue, was this just another one? Then as I learnt more about the fight or flight response, I found …

I would have paid ten thousand pounds.

I would have paid ten thousand pounds to be better. Chronic fatigue syndrome (CFS) is an illness that, perhaps, to some people doesn’t seem much: ‘Everybody gets tired’. This is an illness that you have to live with before you feel the far-reaching implications of never having much energy. An illness that is more destructive …

Another spoon? YES, please. Ways to think about your energy that may help you have just a little bit more.

I didn’t know about  the spoon theory until the last few months of my chronic fatigue syndrome. I’m not quite sure how I missed it. It makes so much sense, doesn’t it? We each have so many spoons a day - a lot less if you have a chronic illness - and we have to share …

Get Well Soon book review: informative and encouraging story of a music journalist’s experience of ME/CFS

I first heard of Nick Duerden through an article he wrote in the Guardian about  health memoirs.  A few weeks later, I spotted his book, Get Well Soon, in a very small bookshop that I go into once every few years. The coincidence seemed too big: I decided I really needed to get this book. …

Doing something out of the ordinary? 10 questions to ask yourself.

I don't know about you and your chronic fatigue syndrome (CFS) but whenever I did something a little bit out of the ordinary - something in addition to my normal routine - I often ended up falling over. Whatever I thought I could do, whatever my great ideas were, they just didn't happen that way and what I'd hoped would be a pleasant break wasn't.

Chi Gong – gentle movements to help you relax.

I’ve got a blogpost in the pipeline where I talk about the twenty five and more different things that helped to propel me from a major relapse to recovery......  But as it is a very long pipeline I was delighted when I came across a blog about Chi Gong and chronic fatigue syndrome as the meditative …